December Awareness Facts
Sleep is important for everyone, but it is especially important for #painwarriors. Dr. Foldvary-Schaefer shared these tips with The Cleveland Clinic to help encourage #selfcare over the holidays. #LightUpTheLandmarks #HolidayPainPlan #ChronicPain #ShareAndMakeAware These #backpain #traveltips from @NASpine include great ideas for ALL #painwarriors. We encourage #ChronicPain warriors to make a #HollidayPainPlan as they travel for the holidays. #LightUpTheLandmarks #SelfCare #ShareAndMakeAware #Inflammation can increase #pain levels. @integrishealth recommends avoiding the foods on Santa’s naughty list. #PainWarriors should try to incorporate more foods from the #nicelist this holiday season. #LightUpTheLandmarks #ChronicPain #SelfCare #HolidayPainPlan #ShareAndMakeAware Great advice from @TheUtopianLife on #Selfcare over the holidays with 5 ways to relax as you celebrate: Start with Solitude, Breathe, Intentional Gratitude, Go Outside & Enjoy Nature, & Make Time to Reflect. #LightUpTheLandmarks #ChronicPain #HolidayPainPlan #ShareAndMakeAware Losing yourself in the chaos of the #holidays is easy to do. Remember, you can’t be your best for others if you don’t first make taking care of yourself a priority. #Selfcare is always important. #LightUpTheLandmarks #PainWarrior #HolidayPainPlan #ShareAndMakeAware
November Awareness Facts
#RSD/#CRPS #Painwarriors often seek out alternative treatments. @RSDSA knows “not all patients can tolerate #pain medications & the possible side effects.” Fortunately, RSDSA provides lots of information on alternative coping skills. #LightUpTheLandmarks #AwarenessFact #CRPSHope RSD/CRPS has had MANY different names over the years. Though the name has changed, the pain persists. #LightUpTheLandmarks #AwarenessFact #ChronicPain #Pain #OrangeDay #ShareAndMakeAware #CRPSHope #PainWarriors #RSDAwareness #CRPSAwareness The severe levels of pain with #RSD causes these #PainWarriors to be at a greater risk of taking their own life as a means of escape. #LightUpTheLandmarks #AwarenessFact #ChronicPain #Pain #CRPSOrangeDay #ShareAndMakeAware #CRPSHope #RSDAwareness #CRPSAwareness Just because an #RSD or #CRPS #PainWarrior wears a smile, that does NOT mean the pain is gone. Odds are, the pain is ALWAYS there. #LightUpTheLandmarks #AwarenessFact #ChronicPain #Pain #ShareAndMakeAware #CRPSHope #RSDAwareness #CRPSAwareness While Stanford Pain believes #CRPS is an immune system disorder, the exact cause is unknown. #RSD affects the nerves that control blood flow, sensation, & temerature. Be sure to follow us for more #AwarenessFacts throughout November! #CRPSOrangeDay #CRPSHope #ShareAndMakeAware According to RSD/CRPS Doesn’t Own Me, in rare instances, #RSD or #CRPS can move beyond treatment resistence & may begin involving inner organs. #LightUpTheLandmarks #AwarenessFact #ChronicPain #Pain #CRPSOrangeDay #ShareAndMakeAware #CRPSHope #PainWarrior(s) #RSDAwareness #CRPSAwareness According to RSDSA, one BIGGEST MYTH about #opiod usage: #pain treatment results “accidentally” addicts. FACT: More than 3/4 of Oxy #ADDICTS in treatment NEVER received a prescription for it! #LightUpTheLandmarks #ChronicPain #ShareAndMakeAware #PainWarrior #RSD #CRPS According RSDSA, treatment for #CRPS/#RSD #pain must be individualized. Most treatments/medications were developed for other #chronicpain syndromes & may not be covered by insurance. #LightUpTheLandmarks #AwarenessFact #CRPSOrangeDay #ShareAndMakeAware #CRPSHope #PainWarrior #RSDAwareness #CRPSAwareness Even when friends & family mean well, they often make misguided comments. #RSD & #CRPS #PainWarriors agree that these are some common phrases not say or ask about #ChronicPain. #LightUpTheLandmarks #AwarenessFact #Pain #CRPSOrangeDay #ShareAndMakeAware #CRPSHope #RSDAwareness #CRPSAwareness Join us for #CRPSOrangeDay by sharing this post AND updating your facebook frame to the RSD/CRPS Awareness Month frame created by Jaclyn Drexel. Be sure to follow @LightUpTheLandmarks for more #AwarenessFacts throughout November! #CRPSHope #ShareAndMakeAware
According to The American Diabetes Association, #Type2 #Diabetes diabetes is progressive. At first, your pancreas makes extra insulin to compensate; however, over time, the pancreas stops making enough insulin to keep your blood glucose at normal levels. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #DiabetesAwarenessMonth #DiabeticWarriors According to The American Diabetes Association, #type1 #diabetes is not just a childhood disease. Contrary to popular belief, #type1 occurs in people of any age, race, size, & shape. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #DiabetesAwarenessMonth #DiabeticWarrior According to SELF magazine & Mayo Clinic staff, studies suggest that having #Type2Diabetes may increase the chances of developing #Alzheimers or other forms of #dementia. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #DiabetesAwarenessMonth #AlzheimersAwarenessMonth According to The American Diabetes Association managing blood sugar & eating well go hand in hand for #DiabeticWarriors. How often you eat is just as important as what & how much. Eating patterns are especially important when you are using insulin. #LightUpTheLandmarks #AwarenessFact #Diabetes Low carb diets can be controversial as the definition of “low carb” can vary from a daily total as low as 20 grams & up to as much as 90 grams. This wide range sparks debate over what is healthiest. #LightUpTheLandmarks #AwarenessFact #DiabetesAwarenessMonth #DiabeticWarriors
The Alzheimer’s Association’s #AwarenessFacts and figures state that “Almost two-thirds of Americans with #Alzheimers are women.” Be sure to follow us for more #AwarenessMonth posts to #ShareAndMakeAware! #LightUpTheLandmarks #EndAlz #Alz According to The Alzheimer’s Society, developing #Alzheimers has been connected to a variety of risk factors. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #AwarenessMonth #EndAlz #Alz According to The Alzheimer’s Research and Prevention Foundation, there are a number of risk factors that lead to the cognitive decline of #Alzheimers; however, it is possible to make lifestyle choices that may reduce your risk factors. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #AwarenessMonth #EndAlz #Alz Nutritional problems are common in persons with #Alzheimers according to The Alzheimer’s Foundation of America. When parts of the brain are damaged by disease, a person may have trouble eating to stay healthy, comfortable, & strong. #LightUpTheLandmarks #ShareAndMakeAware #AwarenessMonth #EndAlz #Alz According to the The Alzheimer’s Association, 83% of #caregivers for older adults are #family, friends, or unpaid. Nearly 1/2 of these caregivers care for someone with #Alzheimers or other dementia. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #CaregiverAwarenessMonth
According to @alzassociation #Alzheimers #Caregivers provided care valued at OVER $232 BILLION! 83% of the help mentioned in this fact are family/friends and NOT paid caregivers! #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #AwarenessMonth #EndAlz #Alz #Family #Friends Help #LightUpTheLandmarks honor & thank the millions of #Caregivers who give their time, energy, & heart to the people we love! #AwarenessFact #ShareAndMakeAware #CaregiverAwarenessMonth #Family According to the Alzheimer’s Association, 1/4th of #dementia #caregivers are the “sandwich generation” – meaning that they care for their aging parent while also caring for their underage kids. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware #CaregiverAwarenessMonth #family According to Caregiver Ally, #caregivers often neglect their own health & well-being. #Selfcare can be simple: walking, gardening, meditation, coffee with a friend. It’s not selfish — itʼs an important part of the job. #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware A question on Caregiving.com asked #caregivers to describe “a bad caregiving day in 6 words.” What would your 6 words be to share what it is to walk in your shoes? Share this post with your 6 words – don’t forget to tag us when sharing! #LightUpTheLandmarks #AwarenessFact
October Awareness Facts
There are approximately 15 known types of dysautonomia; but there is no known single treatment that can address all of the different types. #LightUpTheLandmarks #Spoonie #DysautonomiaAwareness #AwarenessFact An #AwarenessFact from Dysautonomia International states that while some #POTS patients can continue with work, school and social activities, experts estimate that about 25% of POTS patients are so #disabled that they cannot work or attend school. #LightUpTheLandmarks #Spoonie #DysautonomiaAwareness Symptoms of #dysautonomia can be hard to predict, vary in severity, and come and go with little warning. A particular physical activity, even those once considered safe, can suddenly increase the symptoms. #LightUpTheLandmarks #Spoonie #DysautonomiaAwareness #AwarenessFact There is NO CURE for POTS. Various treatments exist for addressing the symptoms associated with POTS; however, the treatments don’t work for everyone. #LightUpTheLandmarks #Spoonie #DysautonomiaAwareness #AwarenessFact According to Dysautonomia International, some POTS patients will get better over time, be either learning to manage their symptoms better, or by actually recovering from the illness. However, some remain sick with POTS indefinitely, and some progressively get worse. #LightUpTheLandmarks #Spoonie #DysautonomiaAwareness #AwarenessFact
No breast is typical. What is normal for you may not be normal for another woman. For more information on what to look for visit the NIH resource page #FightLikeAGirl #BreastCancerAwareness #CancerSucks #SU2C #LightUpTheLandmarks #AwarenessFact According to BreastCancer.Org, 1 in 8 women will be diagnosed with breast cancer at some point in their life. #FightLikeAGirl #BreastCancerAwareness #CancerSucks #SU2C #LightUpTheLandmarks Deaths from breast cancer have declined over time, but remains the second leading cause of cancer death among women overall and the leading cause of cancer death among Hispanic women according to the CDC. #FightLikeAGirl #BreastCancerAwareness #CancerSucks #LightUpTheLandmarks #AwarenessFact The CDC says that different people have different symptoms of #BreastCancer. Some people do not have any signs or symptoms at all. #FightLikeAGirl #BreastCancerAwareness #CancerSucks #SU2C #LightUpTheLandmarks #AwarenessFact #ShareAndMakeAware
The cause of #Stillbirths remains a mysetry, but we do know that this tragic loss does not discriminate and impacts families of all races, religions, ethnicities, income levels , & ages. #LightUpTheLandmarks #BabyLoss #WaveOfLight Have you or someone you know recently joined this unfortunate club? The CDC resource page has a list of organizations that may offer the support you are looking for. #LightUpTheLandmarks #BabyLoss #WaveOfLight In the United States, a miscarriage is usually defined as loss of a baby before the 20th week of pregnancy, and a stillbirth is loss of a baby at 20 weeks of pregnancy and later.
According to the CDC it’s the extra genes at chromosome 21 causing the features of Down syndrome. Since “trisomy” is a medical term for having an extra copy of a chromosome, another name for #Downsyndrome is #trisomy21. #DownSyndromeAwareness #AwarenessFact #LightUpTheLandmarks #DSAM #PeopleFirst #DownSyndrome is a genetic condition that occurs when a person receives “extra” copies, full or partial, of chromosome 21. @NDSS1979 referrs to it as a CONDITION or SYNDROME, not a DISEASE. #DownSyndromeAwareness #AwarenessFact #LightUpTheLandmarks #DSAM #PeopleFirst We are reminded by @NDSS1979 that people “have” #DownSyndrome, they do not “suffer from” it and are not “afflicted by” it. It is also important to remeber that people with Down Syndrome should always be referred to as #PeopleFirst. #DownSyndromeAwareness #AwarenessFact #LightUpTheLandmarks #DSAM #DownSyndrome is a genetic condition that causes some degree of cognitive delay, but can also affect physical development. #HeartDefects are seen in about 1/2 of people with DS, while some of the digestive problems are much less common. #DownSyndromeAwareness #AwarenessFact #LightUpTheLandmarks #DSAM #PeopleFirst
According to the Spina Bifida Association, 8 babies/day are born with #SpinaBifida in the United States. It is the most common neural tube defect, affecting the spine and brain, and often occurs before women even know they are pregnant. #LightUpTheLandmarks #AwarenessFact #SpinaBifida is recognized as the most common #BirthDefect known to cause #PermanentDisability in the U.S. It affects approximately 1500 children each year. #LightUpTheLandmarks #AwarenessFact #SupportChildren #PediatricWarrior 3 Most common types of #SpinaBifida are #Myelomeningocele, #Meningocele, & #SpinaBifidaOcculta with Myelomeningocele being the most serious. #LightUpTheLandmarks #AwarenessFact